The Down Syndrome Association of Greater Cincinnati has a variety of committees that help fulfill our mission. Experienced and passionate volunteers serve on each committee and work together to help make the DSAGC a successful organization.
DSAGC Advisory Council
The purpose of the Advisory Council is to keep key stakeholders engaged with the DSAGC and to be available to advise the Board, Development Committee and the executive leadership with regard to fundraising initiatives, public relations and programming issues. The Advisory Council does not have any authority to govern the DSAGC; such authority resides with the full board.
Pete Ney, Lana Makin, Jane Page-Steiner, Bill McCloy, Tayfun Tuzun, Pat McNickle, Scott MacEachen, Rick Kammerer, Sally Hayes, Connie Hutzel, Lucinda Hurst, Sally Shott
This group includes the Board President, Vice-President, Treasurer and Secretary. They work closely with the Executive Director and sets direction in terms of agendas for the complete board.
Lucinda Hurst, Dave Eberly, Marlena Tarver, Brendan Walsh
The focus of this committee is working on board development, overall health and growth of the board. This group also actively recruits, screens, orients and mentors new board members.
Mark Weiss, Lucinda Hurst, Pat McNickle, Kecia Pringle, Sally Shott
This committee works closely with the Executive Director and the Development Associate on the implementation of a Donor Relations Plan / Annual Campaign to build a solid development foundation beyond relying just on events to produce the needed revenue for the DSAGC.
Bill McCloy, Lucinda Hurst, Chris Collier, Rich Dineen, Leigh Ann Fibbe, Julie Bergantino, Chad Barnett, Cheryl Heilman
The Finance Committee oversees the budget writing process and monitors our revenue, cash flow and expenses on an on-going basis.
Brendan Walsh (chair), Elaina Stuard, Luke Hail, Derrick Theetge
Government Affairs Committee (Advocacy)
The purpose of this committee is to follow and publicize to individuals and families - relevant local, state and national legislative and regulatory developments. They will also seek input from individuals and families as to ways in which governmental advocacy can support the mission of the DSAGC.
David Eberly, Alan Abes, Jen Alge, Ashley Barlow, Kevin Dineen, Emily Chesnut, ad hoc Chip Gerhardt, Adrienne Black
Health Advisory Board
The primary role of this group is to provide encouragement, support and insight to our Health Outreach Coordinator. They will also help us sort through the latest health issues / trends that are impacting the Down syndrome community and then help sort out how we communicate these items to those connected to the DSAGC. We will also seek their help in making networking connections with other medical professionals, who come in contact with parents, who have a child with Down syndrome and expectant parents.
Dr. TJ Nestheide, psychologist HCDD • Dr. Todd Arthur, Neurologist CCHMC • Marty Tomlin, ANP, Cardiology, CCHMC • Dr. Jenny Motley, pediatrician, CCHMC • Dr. Walker Motley, ophthalmologist , CCHMC • Dr. Mark Deis, pediatrician, NKY Pediatrics • Dr. Sally Shott, ENT, CCHMC • Clarissa Rentz, APN, specialist of aging • Dr. Anna Esbensen, psychologist, CCHMC Thomas Center • Dr. Lauren Wang, Internist, Family Medicine • Vicki Hardy-Murrell, RN, Care Coordinator, CCHMC Thomas Center • Dr. Stacey Ishman, ENT, Upper Airway Clinic, CCHMC • Dr. Jason Woodward, med/peds physician, CCHMC • Dr. Kristen Suhrie, MD, neonatologist, CCHMC • Nicki Smith, genetic counselor, Good Samaritian Hospital • Andrea Parker, LSW
Educational Advisory Board
The primary role of this group is to provide encouragement, support and insight to our School Age Matters Coordinator. This group also recruits School District Ambassadors and creates opportunities for educational professionals to improve their skills and comfort level in working with students with Down syndrome. They also create opportunities for parents to help them with IEP’s as well as other educational challenges and needs they have to assist them in issues related to inclusion and other school related topics.
Andy Baker, Ashley Barlow, Gretchen Carroll, Todd Juengling, Susan Katz, Elizabeth Miller, Marty Miller, Heather Walsh
NDSAN Advisory Board (Adoption)
The primary role of this group is to provide encouragement, support and insight to Robin Steele and Stephanie Thompson, the directors of the NDSAN. This is a new group and in time the purpose / focus of this group will become more clear as we seek to improve our efforts to reach out to birth parents around the country considering adoption as well as work with adoptive families, who are interested in adopting a child with Down syndrome.
Rebecca Aguon, Nora Beaulieu, Justin Heimer, Melissa Skavlem, Kasey Young
Buddy Walk Committee
This committee assists the Events Manager in the promotion, logistics and the acquiring of sponsors for the Buddy Walk. Another aspect for this group is to support our Buddy Walk team captains, especially our first-time teams. This group typically meets once a month for 6 months before the event and then has a post-event wrap-up.
Rosie Abel, Lisa Barclay, Pamela Butler, Carl Dragan, Linda Dragan, Matt Oelrich, Maggie Sullivan, Mary Beth Sullivan, Missy Trame, Mary Ann Wainscott, Marlena Tarver, Lindsey Dye
This committee assists the Events Manager in the promotion, logistics, recruiting of players and the acquiring of sponsors for the DSAGC Golf Tournament. Another aspect for this group is to line-up auction items to add another revenue stream to this event.
Dave Lapham, Bill McCloy, Ty Steele, Tom Gregory, Steve Hunt, Doug Kammerer, Chris Sauby, Jim Wilcox, Bill Hunt, Tim Hunt, Tom Eckels, Nick Wunder
Advocates in Action
This group is comprised of individuals with Down syndrome (18 & up) that are interested in giving back to the DSAGC and the community. They volunteer and advocate at DSAGC events, community functions and at local schools. Advocates in Action help the DSAGC fulfill its mission of empowering individuals, educating families and enhancing communities.
Special Project Task Forces
On occasion, we may form short-term Task Forces to focus on a particular project, such as the organizing of a major DSAGC conference, strategic planning focus groups, etc…
Interested in becoming a committee member? Please contact our Executive Director, Jim Hudson at email@example.com.