Healthcare Providers

The DSAGC provides information to pediatricians, obstetricians, nurses, social workers, genetic counselors, midwives and any healthcare provider seeking information on Down syndrome. Over 34 area hospital departments provide our information to their patients who deliver a baby with Down syndrome. In addition presentations and newsletters offer additional up-to-date information.

Healthcare Connetions provides:

Separating Facts From Myth

A WKRC Medical Edge Video. Watch the video.

Down syndrome and Cancer Research

Local12.com featured a story about a local Cincinnati family that battled Leukemia and the promising research being done in Cancer and genetics. Watch the video.

2008 Family Survey

In 2008, the DSAGC conducted an on-line survey of families who had given birth to a baby with Down syndrome between January 2003 and March of 2008. Two surveys were created: one for prenatally diagnosed parents and another for those who received their diagnosis of Down syndrome postnatally.

View the survey results

New Parent's Guide

The “Expecting an Extraordinary Life….A New Parent’s Guide to Down Syndrome” to 34 area hospital departments, special care nurseries, perinatal care programs, and geneticists. It provides an introduction to Down syndrome for new parents. Sensitive, yet informative, this packet includes information on medical issues, breastfeeding and an invitation to connect with other new families who can provide support. If this packet is not available in your Hospital or department, contact Sally to get materials in place. We have additional packets available upon request.

Pediatrician Packet

Interested parties may inquire about this packet available in handout form. It is not yet available electronically. It provides information that a pediatric physician can place in their patient’s medical file. The packet includes the Healthcare Guidelines for Individuals with Down Syndrome: Down Syndrome Preventative Medical Checklist, specialized growth charts which includes expected rate of growth for children with Down syndrome including height, weight and head circumference for both boys and girls. http://www.growthcharts.com/ and general information on Down syndrome.

How to Share the News that a Baby has Down Syndrome

Read this informative document to better understand the best methods to discuss the news. Download the PDF

DS Medpress

A newsletter for healthcare professionals entitled ds Medpress which includes articles of interest for medical professionals, links to helpful sites, and current information on Down syndrome.

Volume 2 Issue 1 - Spring 2010 (PDF 100K)
Volume 1 Issue 3 - Fall 2009 (PDF 100K)
Volume 1 Issue 2 - Summer 2009 (PDF 100K)
Volume 1 Issue 1 - Spring 2009 (PDF 100K)

DS Press

Searching for a deeper understanding of the issues facing the Down syndrome community, succes stories, and general information? Download the latest DS Press or browse the archives.

The DS Press shares current information on a variety of topics relating to Down syndrome. These topics include medical, educational, and a “page for every age”. The newsletter also publicizes the meetings and events sponsored by the DSAGC. Published 6 times per year, it currently reaches over 3,000 individuals including parents, professionals, and individuals with Down syndrome. Contact Lisa, the editor.

Lending Library

Our resource library contains many books in our health, nutrition, and medical collections which can assist healthcare professionals. Books can be shipped free of charge to your home or office. Visit our Lending Library and check out a title today. Have a suggestion for a title missing from our collection? Contact Sally

Links

The DSAGC has compiled a comprehensive list of links to relevant websites of agencies, groups, clinics, and other places ont he web.

Visit our links section

Speaker’s Bureau

The DSAGC will provide volunteer speakers and staff who can provide current and accurate information on Down syndrome to area healthcare providers. These presentations will outline the best practices in working with families, highlight the variety of ways that the DSAGC can help support new families, and each presentation site will be supplied with a free Resource Binder containing current information on Down syndrome.

Physician's Guide

The National Down Syndrome Congress has created a guide for physicians at http://www.ndsccenter.org/physiciansguide/. The guide features physicians George Capone, Laura Cifra-Bean, Sig Pueschel and Brian Skotko discussing medical facts about Down syndrome and sharing their thoughts on how best to deliver the diagnosis. The video tutorial is designed to give doctors who deliver the news accurate information that they can access quickly. It addresses both pre-natal and post-natal settings, and is a resource we are sure you’ll want to recommend to physicians in your area.

Upcoming

St. Patrick Day Parade

Join the DSAGC staff, families and friends as we march in the annual Cincinnati St. Patrick's Day Parade on Saturday March 13, 2010. You don't have to be Irish to come have some fun as we march AND celebrate World Down Syndrome Day on March 21st. This day was created to generate awareness of Down syndrome and encourage acceptance of these individuals in the community. Everyone benefits when we embrace diversity.

3/13/2010
8:00 AM - ???????
Downtown Cincinnati

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