New Parent Information

Congratulations on your new baby!

"Welcome to Holland" - A letter from a mother of a child with Down syndrome

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel.  It’s like this…

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy.  You buy a bunch of guide books and make your wonderful plans.  The Coliseum.  The Michelangelo David.  The gondolas in Venice.  You may learn some handy phrases in Italian.  It’s all very exciting.  Read More

The Babies with Down Syndrome Book

The Babies with Down Syndrome book is a guide for new parents of babies and young children with Down syndrome.  The book discusses a variety of issues including, daily care, family lifestyle, early intervention, inclusion and legal issues concerning Down syndrome.  If you would like to receive a complimentary copy of this book, please contact Jena at

Helpful Links

National Down Syndrome Society

The Jane and Richard Thomas Center for Down Syndrome

Information for Prenatally Diagnosed Families

Active discussion board with Moms of babies with Down syndrome 

Free Resources about Down syndrome