NATIONAL DOWN SYNDROME AGENCIES
Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. After consecutive years of explosive growth, the conference has extended its reach internationally and is now a 501c3 nonprofit trade association continuing its mission: to support and advance the growth and service capabilities of the local and regional Down syndrome organizations we serve, to be the conduit of value-driven training, programs, best practices and support for our members.
Global Down Syndrome Foundation
The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation's primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.
National Down Syndrome Congress
It is the mission of the National Down Syndrome Congress to be the national advocacy organization for Down syndrome and to provide leadership in all areas of concern related to persons with Down syndrome. In that capacity, NDSC will function as a major source of support and empowerment to persons with Down syndrome and their families.
National Down Syndrome Society
The National Down Syndrome Society supports young researchers seeking the causes of, and answers to, many of the medical, genetic, behavioral and learning problems associated with Down syndrome; sponsors internationally renowned scientific symposia; advocates on behalf of families and individuals affected by this condition; provides information and referral services through its toll-free number; and develops educational materials, many of which are distributed free of charge.
LOCAL COMMUNITY PARTNERS
A Step Ahead Pediatric Therapy, a private practice, offers Physical, Occupational, and Speech Therapy. We are the only facility in northern Kentucky offering all three disciplines. All of us at A Step Ahead are dedicated to "helping you help your child".
ABC Pediatric Therapy Network. At ABC Pediatric Therapy Network, we know communication is the key to successful ... ABC Pediatric Therapy Network. 9902 Windisch Rd. West Chester, OH 45069
Our mission is to provide exceptional quality therapy services in a child's natural environment to maximize their functional mobility and independence.
Abilities First provides services for children and adults with disabilities, developmental delays and other special needs in Southwest Ohio. Over 1,000 clients are served annually by 115 employees in an eight county region.
The Greater Cincinnati Chapter of the Alzheimer's Association is one of over 200 chapters across the United States based within local communities to provide services to families and those afflicted with the disease.
The Arc of Ohio advocates for A Future with Human Rights, Personal Dignity, and Community Participation for people who have developmental disabilities and their families.
The mission of the Bureau for Children with Medical Handicaps is to assure, through the development and support of high quality coordinated systems, that children with special health care needs and their families obtain comprehensive care and services which are family-centered, community-based, and culturally sensitive.
Buddy Up Tennis is a weekly, high-energy 90-minute program focused on adaptive tenniBuddy Up Tennis is a weekly, high-energy 90-minute program focused on adaptive tennis, fitness, and fun for children and adults with Down Syndrome.s, fitness, and fun for children and adults with Down Syndrome.
COTI specializes in sensory integration and works with individuals, children and adults, with sensory processing disorder or other related problems including gross motor and fine motor problems, handwriting problems, difficulties with activities of daily living, sensory modulation disorders, behavior issues, self-regulation problems, and difficulties with attachment. Camp OdakOTa is for children who are 6-12 years old and who have sensory processing disorder or related problems.
The mission of Cincinnati Therapeutic Riding and Horsemanship (CTRH) is to serve children and adults with disabilities by helping them lead happier, healthier lives through participation in our equine-assisted activities and therapies including adaptive recreational horseback riding, hippotherapy, and equine facilitated learning. CTRH is committed to the principle that individuals with disabilities are entitled to the same opportunities and rights as their non-disabled peers.
Cincinnati TOP Soccer allows every child with special needs in Cincinnati the opportunity to participate, contribute, and excel in the game of soccer.
Thier goal is for every person with Down syndrome to have proper fitting clothes made for their unique body shapes. They also want to make clothes that are comfortable, easy to get on and off and that are stylish. Downs Designs clothes are more than just shortening a sleeve or taking up a hem, they take design a step further.
Dramakinetics is a non-profit organization that teaches performing arts to children, teens and adults for fun and function (emphasis on FUN). They engage individuals of all abilities through movement, music and drama to help empower all individuals to reach their full potential!
Easter Seals provides services to help children and adults with disabilities and/or special needs as well as support to their families. They provide top-quality, innovative services tailored to meet the specific needs of the people they serve. Some types of services provided are employment and training, adult services, autism services, children’s services, medical rehabilitation, etc.
Envision provides a variety of services to support individuals with disabilities who have histories of mental health issues, trauma, or behavior concerns. They currently serve more than 450 children and adults each year and have been a trusted resource for families for over 50 years.
First Steps is Kentucky's statewide early intervention system that provides services to children with developmental disabilities from birth to age 3 and their families. First Steps is Kentucky's response to the federal Infant-Toddler Program. First Steps offers comprehensive services through a variety of community agencies and service disciplines and is administered by the Department for Public Health in the Cabinet for Health and Family Services.
Hamilton County Developmental Disabilities Service
Hamilton County Developmental Disabilities Services provides an overview of Board services and programs, a history of the agency and a chronology of events, plus a feedback line and a volunteer line.
Help Me Grow is a program for Ohio's expectant parents, newborns, infants and toddlers that provide health and developmental services, so children start school healthy and ready to learn.
Inclusion Advocates are dedicated to helping parents successfully negotiate disputes with their local school districts, coming to agreement on many of the tough issues inherent in today’s educational climate. They assist families within both public and non-public school settings, and has supported students with a wide range of disabilities and educational needs.
The Jane and Richard Thomas Center for Down Syndrome is part of the Division of Behavioral Pediatrics at Cincinnati Children's Hospital Medical Center.The Center conducts ongoing research and offers interdisciplinary evaluations and interventions for infants, children, adolescents and young adults with Down syndrome.They offer assessments by experts in developmental and behavioral pediatrics, speech/language pathology, social work, feeding, occupational and physical therapy, psychology and special education.
Kentucky Access is a state authorized health plan that offers medical coverage to Kentuckians who find it difficult to obtain health insurance in the individual insurance market.
The JCC recognizes the importance of serving people of all abilities, and currently provides programs that accommodate children, teens, young adults, and seniors with disabilities.
Melodic Connections is comprised of board certified music therapists and other like-minded people dedicated to empowering the lives of special needs individuals through musical expression and performance. This mission will be carried out by providing adaptive group guitar and piano lessons to exceptional children, adolescents, and adults.
The mission of the Ohio Department of Developmental Disabilities is to ensure the availability of services and supports that assist individuals in living the life they choose; to promote their health and safety; and to assist and support the families of these individuals in achieving these goals.
The Ohio Legal Rights Service provides information and referral, professional advice, and representation on the broad spectrum of cases involving discrimination, abuse, neglect, or rights violations.
The mission of the Ohio Rehabilitation Services Commission is to work in partnership with people with disabilities to assist them in achieving greater community participation through opportunities for employment and independence.
PLAN of Southwest Ohio's objective is to step in where families do in terms of coordinating care and assisting individuals over their lifetimes. PLAN hopes to become a sort of surrogate family member for people with disabilities over their lifetime.
Bringing the power of art to complement the properties of medicine, Portrait of a Soul seeks to heal some of the emotional issues that children with different conditions may experience by providing a highly artistic, professional portrait.
Located at Cincinnati Children's Hospital, Project SEARCH provides employment and education opportunities for individuals with significant barriers to employment, such as people with disabilities, those on public assistance and the working poor.
Recreation Unlimited offers 1 week camps for campers ages 8 through adulthood. The camp is located in Ashley, Ohio.
Erin’s World Frames are designed with the facial features of an individual with Down syndrome in mind. The lower bridge and widened front help the frame fit properly allowing less slipping, more comfort and a better view of the world. The frames are available in a variety of styles and colors, fitting infants through adults.
Since 1963, Stepping Stones has been helping people with disabilities find pathways to independence that will improve their lives and enable them to be fully participating members of their communities.
A Cincinnati site that has a pictorial "Find A Physician" section allowing a search by specialty, name or zip code. In addition, they list facts regarding Living Wills, Definitions of Medical Specialties, and many links to other reliable web sites.
University Centers for Excellence in Developmental Disabilities (UCEDD) exist in every state and territory to serve as a resource in the areas of education, research and service to meet the needs of people with developmental disabilities.
Vivian’s Victory is a non-profit dedicated to providing support, programs, and resources to parents of children with a poor prenatal diagnosis or a prolonged illness, not only during their hospital stay but during and after their transition home. We believe no child should fight alone and no parent should choose between their child and “life”.
Woodbine House is a publisher specializing in books about children with special needs since 1985. They offer great resources for for parents, children, therapists, health care providers, and teachers.