Advocacy Resources

National Down Syndrome Congress Policy and Advocacy

The NDSC Policy & Advocacy Team is comprised of disability policy professionals who are experienced, well-connected, and highly regarded national subject matter policy experts and leaders. The Policy Team regularly consults with the engaged, experienced, and bipartisan NDSC Public Policy Advisory Council that represents a diversity of viewpoints and experiences.

Center for Public Representation

The Center for Public Representation (CPR) is a national legal advocacy center for people with disabilities.  CPR is dedicated to enforcing and expanding the rights of people with disabilities and others who are in segregated settings. CPR uses legal strategies, advocacy, and policy to design and implement systemic reform initiatives to promote their integration and full community participation. Working on state, national and international levels, CPR is committed to equality, diversity and social justice in all its activities


The Arc is the largest national community-based organization advocating for and with people with intellectual and developmental disabilities (I/DD) and serving them and their families. We work tirelessly to uphold our vision that every individual and family living with I/DD in the United States has access to the information, advocacy, and skills they need to support their full inclusion and participation in the community throughout their lifetimes.

Human Services Chamber of Hamilton County

The Human Services Chamber is a coalition of over 60 human services providers in Hamilton County, Ohio, which includes the City of Cincinnati and outer suburbs.  Our mission is to develop and advocate for public policies that benefit our member organizations and the clients they serve.

Contact your Members of Congress

  1. Email is the best way to contact your members right now. You can use this easy tool to find your members of Congress.This tool also has links to each member’s Twitter and Facebook and a link to contact them via email.
  2. This tool can also be used to easily tweet your members of Congress or Congressional leadership.
  3. You can also email your members directly through this portal put together by our friends at The Arc.

(EXAMPLE) Easy Email Script:

Hello, this is [Name]. I’m a resident of [Town, State].

I am writing to [Senator’s or Representative’s Name] because I’m concerned that Congress’ response to the coronavirus pandemic is not adequately addressing the needs of the millions of people in this country with disabilities, who are among those most affected by this crisis.

The disability community has identified priorities that need to be addressed and any coronavirus response legislation must address these priorities.

We must ask Members of Congress to pass a bill that addresses the specific and critical needs of people with disabilities NOW, including:

Funding for a Medicaid grant program to support access to home and community-based services (to combat institutionalization) and to support the DSP workforce. Congress should pass the Coronavirus Relief for Seniors and People with Disabilities Act.
Personal protective equipment (PPE) for direct support professionals. This is urgently needed to protect the health and safety of this critical workforce. Direct support professionals must be designated as essential workforce so that they have access to the PPE and medical supplies they need.
Paid leave for caregivers. As more people with disabilities lose their usual sources of care, family caregivers are scrambling and need access to paid leave and sick days to help their loved ones. Congress should include all family caregivers in the emergency paid leave provisions.
Help for people on SSI to access Recovery Rebates. People with disabilities on SSI are being asked to file needless paperwork in order to access economic stimulus payments. Congress should tell Federal agencies to use their existing authority to share data and file for people on SSI.

 Thank you!

[Please include your full street address and zip code to ensure your email is tallied]

Voting Changes in Ohio

Webinar from DSAGC Outreach Coordinator

Links referenced in webinar:

Some of these resources were created by the Down Syndrome Association of Greater Cincinnati (DSAGC). If you work for an outside organization or live outside the Greater Cincinnati area, please consider making a donation so we can maintain updated resources.