Adults with Down syndrome lead full and meaningful lives. It is important to ensure that as the individual ages, their needs will be addressed and met. Each family will approach the aging process differently. Planning for the future can allow families to decrease decisions made during crisis. Thus families can feel more prepared and educated about options and opportunities for the future of their family member with Down syndrome. The DSAGC provides consultation, education and tools to assist in supporting families throughout the lifespan in whatever stage or situation you are experiencing.
Our Aging Specialist, Kim Wynn, is responsible for providing support and resources to individuals with Down syndrome (ages 35+) and their families. She is available to assist with aging concerns, guardianship issues, housing, transportation, sibling caregivers, and more. Kim has spent her entire career working in the field of developmental disabilities. Email Kim
The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide first of-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome. This life-changing resource as published in JAMA covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome and outlines critical future research needs. Adults with Down syndrome and their caregivers should review the GLOBAL Guidelines with their clinicians to ensure they are receiving care meeting best-practice standards for adults with Down syndrome!
This all encompassing guide provides resources for all areas of aging - including regression, Alzheimer's disease, screening assessments, dual diagnosis, pain management tools, memory aids, and more.
In the spring of 2024, we invited national experts from the National Task Group on Intellectual Disabilities and Dementia Practices to present at our first-ever Down Syndrome and Dementia Conference. They discussed the link between dementia and Down syndrome, assessments of cognitive decline, review implications of the usage of biomarkers and therapeutics, practical tips for dementia care planning, and more.
The Buddy Walk is the Down Syndrome Association of Greater Cincinnati’s largest fundraising and awareness event of the year, attracting over 15,000 participants and raising half of our annual revenue. Over 420 teams, from across the 12 counties we serve, come together to celebrate our loved ones with Down syndrome. Learn more
