This section of our website is new, and we are still compiling resources to complete it. Please check back soon for even more helpful information. Thank you for your patience!


Written by Ashley Barlow, NDSS Ambassador and DSAGC Board Member

Many are calling the passage of the law the most significant piece of legislation to affect the special needs community since the Americans with Disabilities Act was passed almost twenty-five years ago.  The Achieving a Better Life Experience (ABLE) Act was approved by Congress in its final days of the 2014 session and voted into law by the President on December 19, 2014 as part of the tax extenders package.

Under the laws that were in effect prior to December 2014, people who receive Social Security income, Medicaid benefits, and other federal means-tested benefits based on a disability are only eligible for their benefits if they have less than $2,000.  Until the law becomes regulated by the states, the old laws will stay in place.  The test for Social Security eligibility is, for example, at its most basic level, a two-part test.  If a person qualifies as (1) being disabled, that person may still be ineligible for benefits if (2) he or she earns an income that yields more than $2,000 per month.  If the person is a minor, his or her parents’ income is considered.

There were many problems with the old laws.  Adults with disabilities have been forced into poverty, being disallowed from saving for large purchases or their futures.  Parents have had no choice but to disinherit their children so as to prevent their benefits from being cut off when the parents die.  Businesses have been hiring people with disabilities for many years, knowing that they can pay them significantly less than what they pay their similarly-situated peers, because of the Social Security ceiling.

Why not just forfeit Social Security and other federally-funded benefits?  While some people never apply for benefits, others find that the problem with that strategy is that many services and organizations that fund programs for people with special needs are available only to those on Social Security.  Therefore, people with disabilities cannot pay cash for a lot of the wonderful services and programs available to them.

The ABLE Act is, quite simply, a fantastic solution.  It will allow people with disabilities and their families to establish tax-free savings accounts under Section 529 of the Tax Code and to save up to $100,000 without having their benefits cut off.  The accounts will be similar to Section 529 college savings accounts with the difference being that the expenditures from the ABLE accounts will be made for special needs purposes as opposed to solely educational purposes.  Expenses that qualify will include those incurred for the education, housing, health, assistive technology and devices, transportation, employment training and support of the person with the disability.  The funds in the account will simply supplement the governmentally-funded support without replacing it.

Anyone that was disabled before the age of twenty-six and either receives Social Security income or files the necessary paperwork with the IRS will be eligible to establish the accounts.  They (or their family or friends) will be able to contribute up to $14,000 per year, in aggregate.

ABLE accounts will have Medicaid pay-back clauses, which will mandate that a percentage of the balance of the accounts at the death of the beneficiary be paid back to the federal government for Medicaid expenses incurred on behalf of the person. 

Families with younger children will be able to use ABLE accounts in their estate plans, either as an independent tool or as part of a most complication plan, and adults with disabilities will soon be able to set up ABLE accounts and to accumulate some savings.  It is possible that there will be accounts available in
2015, although each state will need to establish regulations for the accounts.

10 Things You Need to Know About the ABLE Act

Written by the National Down Syndrome Soceity

1. What is an ABLE account?

ABLE Accounts, which are tax-advantaged savings accounts for individuals with disabilities and their families, will be created as a result of the passage of the ABLE Act of 2014. Income earned by the accounts would not be taxed. Contributions to the account made by any person (the account beneficiary, family and friends) would not be tax deductible.

2. Why the need for ABLE accounts?

Millions of individuals with disabilities and their families depend on a wide variety of public benefits for income, health care and food and housing assistance. Eligibility for these public benefits (SSI, SNAP, Medicaid) require meeting a means or resource test that limits eligibility to individuals to report more than $2,000 in cash savings, retirement funds and other items of significant value. To remain eligible for these public benefits, an individual must remain poor. For the first time in public policy, the ABLE Act recognizes the extra and significant costs of living with a disability. These include costs, related to raising a child with significant disabilities or a working age adult with disabilities, for accessible housing and transportation, personal assistance services, assistive technology and health care not covered by insurance, Medicaid or Medicare. 

For the first time, eligible individuals and families will be allowed to establish ABLE savings accounts that will not affect their eligibility for SSI, Medicaid and other public benefits. The legislation explains further that an ABLE account will, with private savings, "secure funding for disability-related expenses on behalf of designated beneficiaries with disabilities that will supplement, but not supplant, benefits provided through private insurance, Medicaid, SSI, the beneficiary's employment and other sources."

3. Am I eligible for an ABLE account?

Passage of legislation is a result of a series of compromises. The final version of the ABLE Act limits eligibility to individuals with significant disabilities with an age of onset of disability before turning 26 years of age. If you meet this criteria and are also receiving benefits already under SSI and/or SSDI, you are automatically eligible to establish an ABLE account. If you are not a recipient of SSI and/or SSDI, but still meet the age of onset disability requirement, you would still be eligible to open an ABLE account if you meet SSI criteria regarding significant functional limitations. The regulations to be written in 2015 by the Treasury Department will have to explain further the standard of proof and required medical documentation. You need not be under the age of 26 to be eligible for an ABLE account. You could be over the age of 26, but must have the documentation of disability that indicates age of onset before the age of 26.

4. Are there limits to how much money can be put in an ABLE account?

The total annual contributions by all participating individuals, including family and friends, is $14,000. The amount will be adjusted annually for inflation. Under current tax law, $14,000 is the maximum amount that individuals can make as a gift to someone else and not pay taxes (gift tax exclusion). The total limit over time that could be made to an ABLE account will be subject to the individual state and their limit for education-related 529 savings accounts. Many states have set this limit at more than $300,000 per plan. However, for individuals with disabilities who are recipients of SSI and Medicaid, the ABLE Act sets some further limitations. The first $100,000 in ABLE accounts would be exempted from the SSI $2,000 individual resource limit. If and when an ABLE account exceeds $100,000, the beneficiary would be suspended from eligibility for SSI benefits and no longer receive that monthly income. However, the beneficiary would continue to be eligible for Medicaid. States would be able to recoup some expenses through Medicaid upon the death of the beneficiary.

5. Which expenses are allowed by ABLE accounts?

A "qualified disability expense" means any expense related to the designated beneficiary as a result of living a life with disabilities. These include education, housing, transportation, employment training and support, assistive technology, personal support services, health care expenses, financial management and administrative services and other expenses which will be further described in regulations to be developed in 2015 by the Treasury Department.

6. Where do I go to open an ABLE account?

Each state is responsible for establishing and operating an ABLE program. If a state should choose not to establish its own program, the state may choose to contract with another state to still offer its eligible individuals with significant disabilities the opportunity to open an ABLE account.

After President Obama signs the ABLE Act, the Secretary of the Department of Treasury will begin to develop regulations that will guide the states in terms of a) the information required to be presented to open an ABLE account; b) the documentation needed to meet the requirements of ABLE account eligibility for a person with a disability; and c) the definition details of "qualified disability expenses" and the documentation that will be needed for tax reporting. 

No accounts can be established until the regulations are finalized following a public comment period on proposed rules for program implementation. States will begin to accept applications to establish ABLE accounts before the end of 2015.

7. Can I have more than one ABLE account?

No. The ABLE Act limits the opportunity to one ABLE account per eligible individual. 

8. Will states offer options to invest the savings contributed to an ABLE account?

Like state 529 college savings plans, states are likely to offer qualified individuals and families multiple options to establish ABLE accounts with varied investment strategies. Each individual and family will need to project possible future needs and costs over time, and to assess their risk tolerance for possible future investment strategies to grow their savings. Account contributors or designated beneficiaries are limited, by the ABLE Act, to change the way their money is invested in the account up to two times per year.

9. How many eligible individuals and families might benefit from establishing an ABLE account?

There are 58 million individuals with disabilities in the United States. To meet the definition of significant disability required by the legislation to be eligible to establish an ABLE account, the conservative number would be approximately 10 percent of the larger group, or 5.8 million individuals and families. Further analysis is needed to understand more fully the size of this market and more about their needs for new savings and investment products.

10. How is an ABLE account different than a special needs or pooled trust?

An ABLE Account will provide more choice and control for the beneficiary and family. Cost of establishing an account will be considerably less than either a Special Needs Trust (SNT) or Pooled Income Trust. With an ABLE account, account owners will have the ability to control their funds and, if circumstances change, still have other options available to them. Determining which option is the most appropriate will depend upon individual circumstances. For many families, the ABLE account will be a significant and viable option in addition to, rather than instead of, a Trust program.