Health Guidelines

The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide first of-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome. This life-changing resource as published in JAMA covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome and outlines critical future research needs. Adults with Down syndrome and their caregivers should review the GLOBAL Guidelines with their clinicians to ensure they are receiving care meeting best-practice standards for adults with Down syndrome!

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Click here to view the FULL Adult Medical Care Guidelines.

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Click here to view a printable Adult Medical Care Guidelines Checklist.

In July of 2011, the American Academy of Pediatrics (AAP) Committee on Genetics published revised guidelines to assist physicians in providing care to individuals with Down syndrome (Ds). Previous guidelines were published in 1999. Eight years later, the most welcomed and updated guidelines provide clinicians assistance in the key areas including prenatal testing and counseling; feeding in the infant with Down syndrome; airway, cardiac , neurologic and gastrointestinal assessment; growth in children with focus on BMI or weight for length (no longer using Ds growth curves); evaluation for atlantoaxial instability (AAI), clarification about screening for thyroid disorders and celiac screening; and vision and hearing screening.

Summary of the Health Guidelines for Children with Down syndrome