New & Expectant Parents

Since 1981, we’ve had the honor of walking alongside families as they begin their journey with a Down syndrome diagnosis. From the very first moment and through every age and stage of life, we are here—with unwavering support.

Whether it’s sharing helpful resources, creating meaningful connections, offering inclusive programs, or standing strong in advocacy, our commitment is simple: you are not alone.

If you—or someone you love—has recently received a Down syndrome diagnosis, please know that when you’re ready, we’re here. To listen. To support. To walk with you, every step of the way. 

Our hope is that the information in our A New Parent’s Guide to Down Syndrome publication will help you to begin to understand Down syndrome and help you to see your baby’s great potential.

The emotions that you are experiencing right now are probably intense. These emotions are very typical when you learn that your newborn journey is not what you had anticipated. Although the needs of your baby may seem overwhelming to you right now, let us reassure you that your baby is more like than unlike other babies. Your little one will bring you many happy moments and there will be many occasions for celebration. You can count on us to help. We are here to offer you the information and support that will assist you during these early days. Based on your comfort level and individual request, we can:

• Introduce you to our Early Matters Coordinator who has helped hundreds of families in your shoes.
• Connect you with other families with children from birth - 5 years old who can offer you the personal support from the perspective of someone who can easily recall the feelings and emotions that you may be experiencing.
• Mail books to you from our Lending Library about your new child free of charge.
• Connect you with other local agencies that can help you-including the Jane and Richard Thomas Center for Down Syndrome at Cincinnati Children’s Hospital Medical Center, early intervention programs and other state & county programs.
• Send you packets of information specific to grandparents, relatives, and a general packet about Down syndrome.
• Send you our monthly e-newsletter & quarterly magazine, DSPress.
• Visit you with a basket full of gifts for you and your baby.

As one mother said, “The best phone call I ever made was to the DSAGC.”

Take time to get to know your baby. When you are ready, contact us. Email Maggie